Annual Course | How to Help Patients Live with Epilepsy
Sunday, December 5, 2021
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OVERVIEW:
This day-long course presents contemporary issues in the treatment and care of patients with epilepsy and covers topics such as access to care, health equity, telehealth, as well as address comorbidities in epilepsy and updates in the treatment of epilepsy. This year’s theme, Helping Patients Live with Epilepsy, centers on the presentations and all subsequent discussions. Each session will begin with a patient story to frame the session.
The day is divided into four sessions starting with access to care followed by advocacy and resources. The afternoon session focuses on "non-epilepsy" issues and concludes with a discussion on the future of patient care.
- The first session focuses on access to care and covers care in low- to middle-income countries, access to care and quality measures. Alternative topics to be included are time to surgical evaluation and epilepsy evaluation.
- The second session addresses resources outside the epilepsy office. These topics will include cardiology, behavioral and cognitive therapy for PNES, family rare disease networks, and a debate about where to access mental health care.
- The third session highlights issues beyond epilepsy. This presentation opens up with a debate of when to discuss Sudden Unexcepted Death in Epilepsy (SUDEP), followed by talks on self-management of mental health; comorbidities of epilepsy; and the epilepsy rehabilitation unit.
- The final session addresses the future of epilepsy treatment. Topics include seizure applications, future of imaging, transition of care and epilepsy surgery
Learning Objectives:
Following participation in this activity, participants will be able to:
- Indicate the factors that influence access to care
- Summarize the American Academy of Neurology quality measures for epilepsy
- Employ a method to routinely assess comorbidities in persons living with epilepsy
Program:
Chair: Kelly Knupp, MD, MSCS, FAES
8:45 AM Introduction | Kelly Knupp, MD, MSCS, FAES
Session 1: Access to Care
8:50 AM Patient Story: Accessing Care | DJ Hapa, Advocate for Epilepsy
8:55 AM Lecture: Living with Epilepsy in Low- and Middle-Income Countries | Jorge Vidaurre, MD, FAES
9:15 AM Lecture: Health Equity and Epilepsy | Leah Blank, MD, PhD
9:35 AM Lecture: Quality Measures in Epilepsy | Nathalie Jette, MD, MSc
10:05 AM Break
Session 2: Resources Outside of the Epilepsy Office
10:20 AM Patient Story: Resources | DJ Hapa, Advocate for Epilepsy
10:25 AM Lecture: The Epileptic Heart | Trudy Pang, MD
10:45 AM Lecture: PNES and Cognitive-Behavioral Therapy | Evan Schulze, PhD
11:05 AM Lecture: The Power of Family Networks | Karen Utley, BSN, RN and Nora Wong, PhD
11:25 AM Debate: Should Neurologists Provide Mental Health Care? | Adriana Berneo-Ovalle, MD and Stephen Schuele, MD, FAES
11:55 AM Break for lunch
Session 3: Moving Beyond Epilepsy
2:00 PM Patient Story: Resources | DJ Hapa, Advocate for Epilepsy
2:05 PM Discussion: SUDEP Challenges in Care | Alicia Goldman, MD, PhD, FAES and Daniel Friedman, MD, FAES
2:35 PM Lecture: Mental Health Self-Management | Tanya Spruill, PhD
2:55 PM Lecture: Somatic Comorbidities of Epilepsy | Roland Thijs, MD, PhD
3:15 PM Lecture: The Epilepsy Rehab Unit | Christian Bien, MD
3:35 PM Break
Session 4: The Future of Patient Care
3:50 PM Patient Story: The Future | DJ Hapa, Advocate for Epilepsy
3:55 PM Lecture: Do Seizure Apps Help? | Jessica Fesler, MD, MEd
4:25 PM Lecture: The Future of Imaging | Kathryn Davis, MD, MS, FAES
4:40 PM Lecture: Transition of Care | Christine Baca, MD
4:55 PM Lecture: The Future of Epilepsy Surgery | Alex Ksendzovsky, MD, PhD
5:10 PM Course Wrap Up | Kelly Knupp, MD, MSCS, FAES
Education Credit:
6.0 Nursing Contact Hours
6.0 Pharmacy Contact Hours
6.0 CME
This educational activity is supported in part by education grants from: Biocodex, Eisai Inc. Greenwich Biosciences, part of Jazz Pharmaceuticals; and UCB, Inc.